PSC Patients Europe Board members:
Marleen Kaatee – President
Petra van Houwelingen-de Wit – Secretary
Erik Dorrepaal – Treasurer
We have ad hoc Advisors to the Board, volunteers who assist and advise the PSCPE Board on various topics in which they are experts, like a parent of a child with PSC, a transplantee, a researcher etc..
Cathy Hassels Monning (True Blue – Creative Healthcare Communications)
PSC Patients Europe is a Eurordis member and we are active volunteers within the organisation, including
* Member of the Eurordis Council of Federations (CEF)
* member of the Eurordis DITA Task Force (Drug Information, Transparency & Access)
We attend the Eurordisannual EMMs, the Eurordis Membership Meetings
PSC Patients Europe is also a member of VSOP, the Dutch Rare Disease organisation.