Do you also want your voice heard in PSC research?

Would you like to have a say in the priority setting for PSC research? And give researchers, regulators and other stakeholders a better idea on what having PSC means in your daily life?

The biggest pan-European PSC Patients Survey that has ever taken place is now closed. We want to thank all respondents for their input. Hundreds of PSC patients filled in the survey, from all corners of the world. Yes, from over 35 countries... .

The feedback collected will assist the PSC community to move forward and will be shared, free of charge, with the PSC Community.

The survey was available in 6 languages:

Deutsch / German
Français / French
Nederlands / Dutch
Norsk / Norwegian
Svenska / Swedish

 Tio see the results of the survey, check out this document:ReportPSCPEEuropeSurvey

New surveys will be posted here in due course.