PSC Patients Europe Board members

Mrs. M. M. Kaatee (Marleen), BComm & Eupati Fellow – President
Mrs. L.M. de Lannoy (Larissa), PhD – Secretary & Head Research
Mr. A. Shurink (Albert) – Treasurer

We have (ad hoc) Advisors to the Board, volunteers who assist and advise the PSCPE Board on various topics in which they are experts, like a parent of a child with PSC, a transplantee, a researcher etc..

Here’s our Strategic Plan 2015 – 2018

Organisation chart

Communications Department

Cathy Hassels Monning (True Blue – Creative Healthcare Communications)

We have a PSC Patients Europe Facebook page and a twitter accout: @PSCPatientsEur

 

Our memberships and support  to other organisations

We attend the Eurordis annual EMMs, the Eurordis Membership Meetings.

 

  • PSC Patients Europe is also a member of VSOP, the Dutch Rare Disease organisation. Its mission is to optimize the outcomes of biomedical and genetic research to the benefit and quality of life of patients, amongst others by stimulating and facilitating patient involvement in clinical research.
  • And we are a supporting organisation of Health-RI,  ‘creating value for society by facilitating all steps in the process of health research’.